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The ABLE National Resource Center is the leading source of objective, independent information and best practices related to tax-advantaged ABLE savings accounts and federal and state-related ABLE programs and activities. ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families.

Accessia Health

Accessia Health® is a national nonprofit 501(c)(3) organization that provides programs and services to individuals of all ages who are living with a rare or chronic health condition. With 90+ disease programs and over $1 billion in assistance distributed, we offer case management, education, and financial support for health insurance premiums, medication copayments, travel, and other essential medical expenses.

The Air Care Alliance is a 501(c)(3) nonprofit public service organization representing a nationwide network of volunteer pilot groups that deliver impactful and inspiring service through aviation. ACA encourages volunteerism among pilots, helps patients access the free air transportation they need, and ensures that charitable aviation remains a viable resource to those who need it most.

The Assistance Fund is an independent 501(c)(3) organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.

Many older people need help paying for prescription drugs, healthcare, utilities and other basic needs. Ironically, millions of older Americans—especially those with limited incomes—are eligible for but not receiving benefits from existing federal, state and local programs. Ranging from heating and energy assistance to prescription savings programs to income supplements, there are many public programs available to seniors in need if they only knew about them and how to apply for them.

The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

The Children’s Defense Fund is a nonprofit organization devoted to children’s issues, including the Children’s Health Insurance Program.

Families USA is a non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. The website contains state and national resources.

Family Voices is a national organization that provides information and education concerning the healthcare of children with special health needs.

Good Days is a national non-profit charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness. Their financial assistance program for people with chronic granulomatous disease (CGD) providers up to $3500 for medication costs.

A resource for families, individuals and the self-employed, the Health Insurance Resource Center provides the tools to become a better-informed health insurance consumer.

The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses.

This site provides links to state child and adolescent health insurance programs.

The Invisible Disabilities Association (IDA) helps those living with various conditions, as well as their loved ones, through its website, articles, literature, projects, and seminars.

Keep Swimming Foundation provides relief to families of critically ill patients who require extended inpatient medical care at an accredited hospital through micro-grants ranging from $100 to $1,500.

Mercy Medical Angels removes the barrier to medical care with transportation on the ground with gas cards, bus and train tickets and in the air with flights flown by volunteer pilots and the commercial airlines. Mercy Medical Angels is the largest charitable medical transportation system in the world. Last year, we provided more than 53,000 free patient trips to clinical care.

Provides children and their families free flights to distant, specialized care and second opinions.

The National Committee for Quality Assurance (NCQA) is a private, not-for-profit organization dedicated to assessing and reporting on the quality of managed care plans.

The National Disabilities Rights Network (NDRN) is a nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.

The National Family Caregivers Association (NCFA) is a grassroots organization created to educate, support, empower, and speak up for millions of Americans who care for chronically ill, aged, or disabled loved ones.

The National Patient Travel Center is a nonprofit organization that provides a variety of services to individuals and families seeking ways to travel long distances for specialized medical evaluation, diagnosis, and treatment.

NeedyMeds provides information on programs that help people facing problems paying for medications and healthcare; assists those in need in applying to programs; and provides health-related education using innovative methods.

NORD RareCare Patient Assistance Programs

The National Organization for Rare Disorders (NORD) is a non-profit organization that provides information, programs, and services for thousands of rare medical conditions, including primary immunodeficiencies. NORD's RareCare® Patient Assistance Program offers more than 100 opportunities for financial aid to pay for the medical care you need and to help you through emergency situations.

The Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. They offer a co-pay relief program for individuals with all types of insurance.

The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other healthcare providers, patient advocacy organizations, and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.

The Patient Notification System is a program developed by the Plasma Protein Therapeutics Association (PPTA) to notify patients who receive plasma products, such as intravenous immunoglobulin (IVIG), about product recalls.

Patient Services Incorporated (PSI) is a nonprofit charitable organization dedicated to subsidizing the high cost of health insurance premiums and co-payments for persons with specific chronic illnesses, including primary immunodeficiencies.

Rare Wish

Rare Wish (a sister organization to Rare Strides ) grants wishes, funds clinical innovation, and offers free healthcare tools to improve the quality of life for families affected by rare disease.

Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that healthcare professionals and patients can find the information they need.

Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.

Triage Health provides free education on legal and practical issues to help you navigate health care, through resources, materials, and events. This is especially important when navigating a chronic or serious medical condition. Triage Health is a program of Triage Cancer®.

A-T Children’s Project

The A-T Children’s Project is a nonprofit organization that raises funds to support and coordinate biomedical research projects, scientific conferences, and a clinical center aimed at finding a cure for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, cancer, and immune system problems.

APS Type 1 Foundation

The foundation's activities are focused on connecting patients and families to the best care possible, providing clinician-scientists with opportunities to connect with patients and share their work, while driving research forward by awarding significant grants.

CGD Society

The Chronic Granulomatous Disorder Society (CGD Society) is based in the UK and was originally registered as a charity in 1991 under the name The Chronic Granulomatous Disorder Research Trust. Over the years, the charity has transformed from a small parent support group into a leading global source of information and support for Chronic Granulomatous Disorder (sometimes referred to as Chronic Granulomatous Disease).

CHARGE Syndrome Foundation

The CHARGE Syndrome Foundation was founded in 1982 in Columbia, Missouri. Today, the organization offers a biennial international conference, support for clinical and scientific research, and support and resources for families. 

Chronic Granulomatous Disease Association of America

The Chronic Granulomatous Disease Association of America (CGDAA) is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research.

Hyper IgM Foundation

The Hyper IgM Foundation works to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM Syndrome through research, support, education and advocacy to families and patients.

IPEX Foundation

To improve the treatment, quality of life, and long term outlook for children and adults living with IPEX syndrome through research, support, education, and advocacy to families and patients. 

Job Research Foundation

Funds research into Job syndrome with the hope of finding better therapies and treatments for those living with the disease.

SCID Foundation

SCID Foundation aims to empower families affected by Severe Combined Immunodeficiency (SCID) through awareness, education, advocacy, and support.

US Hereditary Angioedema Association

Founded in 1999, the US HAEA was created by people with HAE and their caregivers who wanted to change the quality of life for others, who like them, had spent years suffering through the pain and misunderstanding of HAE. Today, our organization connects more than 8,000 people with HAE and their caregivers across the United States with valuable support services, advocacy initiatives, medical research, and more. 

Wiskott-Aldrich Foundation

This site provides information about Wiskott-Aldrich Syndrome (WAS). The links on this site include information for patients and families, the latest research related to WAS and financial support.

XLA Life

XLA Life fosters the unification and empowerment of the global X-Linked Agammaglobulinemia (XLA) community through education, advocacy, and initiatives that aim to improve the overall quality of life for those affected by XLA.

XLP Research Trust

This organization promotes and funds research into the cause, management, symptoms and cure for X-linked Lymphoproliferative (XLP) disease; raises awareness of the disease; and is a point of contact and support for families affected by XLP.